Bradley Update

In about three months of therapy Bradley has gone from not being able to sit up to sitting, getting from sitting to laying, getting from laying to sitting, scooting, crawling and pulling onto his knees. Now we are working on getting him to take the next steps to pull up to his feet. He will put some weight on his feet now. He is into everything and going everywhere on his own. I blink my eyes and he has disappeared into the other room.

His eating has greatly improved. He did not like baby food at all. As soon as I started giving him table food he started eating more solids. He pretty much eats whatever we eat. When him and I go to litigation lunch he eats the whole time.

In the last two days we have had a sippy cup break through. We went through about five sippy cups. EI brought us a special straw training cup and while he will drink from it he won’t drink much, maybe 3 ounces in a day. Yesterday I started putting his formula in his NUK sippy cup (that matches his bottles, that were the only bottle he would take) and he drank almost all of it. Today I have put two of his bottles in it and he has drinker both of them. It’s crazy how the first cup we tried now months later and many cups later its the cup he is taking.

Sleeping is a progress. Sleeping through the night is one of his goals. Several times he has gotten to the point that he would sleep through the night a night or two then he’d get an ear infection and he wouldn’t sleep through the night again. He likes to go to bed around 6:30 pm and stay on the bed till 6 am but he will get up one or two times for a bottle. Last night he slept 12 hours without getting up so hopefully we are getting closer to sleeping through the night.

His ears have been a continuously concern. He has had four ear infections but three different occurrences. The last time he had one it was in one ear, he took meds and it moved to the other ear, got more meds and it cleared up. We discussed tubes but that was when his doctor realized he needed one more to qualify for them. However due to all the issues he has had and now that he is finally doing so well the doctor is very uncomfortable putting him to sleep. He said something tells him not to put Bradley to sleep so I agreed no tubes. If he has more ear infections that are worse we will revisit that thought but for now he will not be getting them.

We have had many issues with the insurance company when it comes to getting Bradley’s medicine filled. One of his medicines he was suppose to take three times a day but the doctor said he didn’t have to have it that many times and the possible side affects of it scared me so all he ever got it was twice a day. After he started doing so well eating I decided to stop one of the doses of it. It’s the medicine that made him sleep so we had a few rough nights but it was worth it. Then after his doctor’s appointment we completely stopped that medicine. One down and one to go. Once we saw he was doing well without the first medicine that we stopped it was time to start decreasing the other medicine. He only took it once a day so we cut the dose in half and after about a week completely stopped it. He has now been medicine free for three days.

All and all he is doing much better now. We have to go back to the heart doctor this fall and hopefully he will be released from the heart doctor then. We go to the eye doctor next week and hopefully we will get a good report there.


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